Channel
@helpspinabifida
On this record: Topic · Growth · Engagement · Reactions · Posts · Citations · Cite this entry
1,626subscribers
-3 since we began measuring on 7 August 2026
Risers and fallers across the register · movement among entries of 1,000–3,162.
| Telegram ID | -1001613006246 |
|---|---|
| Type | Channel |
| Username | @helpspinabifida |
| Created | 23 October 2021 — measured — cross-checked against a third-party dataset (ext.tg_channel) |
| First recorded | 7 August 2026 |
| Last confirmed live | 16 September 2026 |
| Measurements held | 9 |
| Confirmed unchanged | 1 time, most recently 16 September 2026 |
| On Telegram | t.me/helpspinabifida |
Parenting & family — a classification, not a measurement. An on-box language model (Qwen3.6-35B-A3B-FP8, prompt version 1) read this channel’s own recent posts on 17 September 2026 and assigned it the closest of 31 fixed categories, at 75% confidence. This is a model’s judgement about what the channel is likely to be about, not a fact this register measured the way a subscriber count or a view count is measured — it can be revised on a later pass, and it carries no weight anywhere else on this page. How this classification works, and why it has no browse page of its own yet.
| Measured (UTC) | Subscribers | Change |
|---|---|---|
| 16 Sept 2026, 20:18 | 1,626 | -2 |
| 9 Sept 2026, 03:56 | 1,628 | -5 |
| 3 Sept 2026, 11:55 | 1,633 | +2 |
| 31 Aug 2026, 06:47 | 1,631 | +1 |
| 24 Aug 2026, 17:15 | 1,630 | -2 |
| 21 Aug 2026, 02:33 | 1,632 | +1 |
| 14 Aug 2026, 21:25 | 1,631 | +2 |
| 7 Aug 2026, 21:03 | 1,629 | no change |
| 7 Aug 2026, 17:13 | 1,629 | first reading |
6 posts held, back to 29 July 2026 — the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 page of Telegram’s post history, 20 posts per page.
Nothing published in the last 30 days. ERR and ER are rolling 30-day measures, so there is nothing to compute — we hold 6 posts for this entry, the most recent from 6 August 2026. An engagement rate over an empty window would be a number about nothing.
33 reactions across 5 posts, in 4 distinct kinds. The most used accounts for 75.8% of them.
| Reaction | Count | Share | Share, drawn |
|---|---|---|---|
| ❤ | 25 | 75.8% | |
| 🔥 | 6 | 18.2% | |
| 👏 | 1 | 3.03% | |
| 🥰 | 1 | 3.03% |
No sentiment is inferred, and none should be read in. This table is ordered by count and by nothing else. Emoji do not carry stable meaning across languages or communities — 🙏 is thanks in one channel and mourning in another — so we publish which ones were pressed and how often, and pass no judgement on what an audience meant by them.
Precision. Telegram publishes reaction counts per emoji and short-forms each one — 4.34K, 1.2M — so any single kind at or above 1,000 reaches us at three significant figures, and only counts below 1,000 are exact. The shares above are ratios of those figures and carry the same error. This is also why the total here can differ slightly from a reaction total printed elsewhere on the page: both are sums of the same rounded parts, taken over samples with different edges.
Coverage. Reactions were read on 5 of the 6 sampled posts in this sample. Summed by Telegram’s own count on each post — not by adding up the per-emoji breakdown above — those same posts carry 33 reactions in total: the kind of figure the paragraph above means by “a reaction total printed elsewhere on the page”.
Measured over the 6 most recent posts we hold, published 29 July 2026 to 6 August 2026, using the newest reading held for each. Telegram Stars are excluded: they are a payment, not a reaction, and they have their own section.
1 августа начался наш семейный выезд в Раздолье, который мы проводим уже третий год подряд — очень важная традиция фонда «Спина бифида». Раздолье — это живописная деревня недалеко от Санкт-Петербурга: сосновый бор, чистое озеро, свежий воздух и ощущение большого летнего приключения. Сюда приезжают семьи с детьми сдиагнозом spina bifida, а также ребята из детских домов, для которых мы ищем любящих родителей. 🩵 Мы оч…
❤1👏1🥰1
⁉️ Что мы должны знать о безопасности детей. Мы привыкли думать, что насилие - это что-то из криминальных сводок. Что-то далекое, происходящее с неблагополучными семьями в асоциальной среде. Читая это, мы инстинктивно отодвигаем тревожные мысли, потому что тема невероятно дискомфортная. Но правда, подтверждается большими международными исследованиями. Дети в целом самая уязвимая категория, подвергающаяся насильствен…
❤2
🌹 Добро начинается с родительского чата: меняем десятки букетов на спасение детских жизней 🌺 Кажется, до 1 сентября ещё далеко. Но именно сейчас в родительских чатах начинают обсуждать линейки, форму, рабочие тетради… и, конечно, цветы для учителя. А значит, сейчас настало самое время предложить классу принять участие в акции «Дети вместо цветов» от нашего фонда. Если вы уже участвовали, расскажите о своём опыте д…
❤4
«Я не могу этим не заниматься За 10 лет опыта работы в БФ «Спина бифида» я насмотрелась много разных историй и понимаю, что предотвратить смерть ребёнка, предотвратить его испорченную тотально жизнь и жизнь в детском доме можно, если выявить эту патологию на раннем сроке. Этот проект был создан визионерски, потому что я сама не отношу себя ни к медикам, ни к IT-специалистам. А этот проект очень сложный, он на стыке м…
❤5🔥4
Мы видим ваш труд. Открытое письмо Людмилы Цуркан сотрудникам детских домов 💬 Сегодня мне хочется написать слова благодарности сотрудникам детских домов. Меня зовут Люда Цуркан, я куратор проекта «Помощь детям-сиротам» БФ «Спина бифида». За время работы в фонде я побывала во многих детских домах и своими глазами видела людей, которые каждый день вкладывают в детей свое сердце, силы и время. Очень часто о сотрудн…
❤13🔥2
Уважаемые родители и специалисты! 1 августа стартуют два бесплатных онлайн-курса: 1. Раннее развитие детей с диагнозом spina bifida для специалистов Для кого курс? • Врачей-педиатров • Неврологов • Инструкторов- методистов по адаптивной физической культуре • Врачей по лечебной физкультуре и спортивной медицине • Эрготерапевтов • Физических терапевтов Куратор курса - Анастасия Белошенко, врач-педиатр высшей катег…
Showing the 6 most recent of 6 posts we hold for @helpspinabifida. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked ≈ was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.
Republished by
Channels on the register that have forwarded this channel's posts into their own feed.
Built only from forwarded posts we have actually read, on both sides. Coverage is early and deliberately incomplete: a missing link means we have not read the post that would prove it, never that the relationship does not exist. Counts are distinct forwarded posts observed, so they only ever go up as we read more.
Named by 2 registered channels — every channel on the register whose own posts have named this one, by its current username or any other username it currently holds, merged from two separately captured readings of the same fact so a namer caught by only one of them is not missed and a namer both caught is not counted twice. A username this channel has since dropped is not matched — that handle may belong to someone else now, and crediting today’s namer to yesterday’s owner would misattribute it.
Named by
Channels on the register whose posts name this channel's handle.
Names
Channels on the register whose handles appear in this channel's posts.
A mention is a weaker signal than a forward and is counted separately for that reason — naming a channel is not republishing it, and a handle in a post body is easy to place deliberately. The post counts beside each row below are distinct posts in which the handle appeared, from posts we have read on both sides — the “Named by N registered channels” figure above is a different count, of distinct NAMING CHANNELS rather than posts, and is not the sum of the rows under it.
A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 16 September 2026 — this entry's latest reading, not the date you are reading this.
“Новости БФ "Спина бифида"” (@helpspinabifida), 1,626 subscribers as measured 16 September 2026. Telegram Register, tgregister.com/channel/helpspinabifida.
Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.