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Channel

Living with NF زندگی با ان.اف

@livingwithNF

On this record: Growth · Engagement · Reactions · Posts · Citations · Telegram's recommendations · Cite this entry

792subscribers

-1 since we began measuring on 5 August 2026

Risers and fallers across the register · movement among entries of Under 1,000.

Register entry

Telegram ID-1001007776962
TypeChannel
Username@livingwithNF
CreatedBetween 1 September 2015 and 31 December 2015 — estimated from Telegram’s id allocation, not measured. How this range is calculated.
First recorded6 August 2026
Last confirmed live7 September 2026
Measurements held5
Confirmed unchanged1 time, most recently 7 September 2026
On Telegramt.me/livingwithNF

Growth

792795793.55 August 2026 — 793 subscribers6 August 2026 — 793 subscribers23 August 2026 — 795 subscribers30 August 2026 — 793 subscribers7 September 2026 — 792 subscribers5 August 20267 September 2026
5 measurements spanning 32 days, net -1. Dots are measurements; the straight line between them is drawn to join them, not to claim we know the path taken in between — snapshots are recorded only when a count changes, so gaps mean “no change observed”, never “interpolated”. The vertical axis spans 792–795 and does not start at zero.
Measurement log — every subscribers count we have recorded
Measured (UTC)SubscribersChange
7 Sept 2026, 08:18792-1
30 Aug 2026, 12:14793-2
23 Aug 2026, 05:56795+2
6 Aug 2026, 15:32793no change
5 Aug 2026, 22:21793first reading

Engagement

19 posts held, back to 3 August 2026the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 page of Telegram’s post history, 20 posts per page.

Nothing published in the last 30 days. ERR and ER are rolling 30-day measures, so there is nothing to compute — we hold 19 posts for this entry, the most recent from 5 August 2026. An engagement rate over an empty window would be a number about nothing.

Reaction mix

7 reactions across 4 posts, in 2 distinct kinds. The most used accounts for 57.1% of them.

Every reaction kind recorded on the sample, most used first
ReactionCountShareShare, drawn
👍457.1%
342.9%

No sentiment is inferred, and none should be read in. This table is ordered by count and by nothing else. Emoji do not carry stable meaning across languages or communities — 🙏 is thanks in one channel and mourning in another — so we publish which ones were pressed and how often, and pass no judgement on what an audience meant by them.

Precision. Telegram publishes reaction counts per emoji and short-forms each one — 4.34K, 1.2M — so any single kind at or above 1,000 reaches us at three significant figures, and only counts below 1,000 are exact. The shares above are ratios of those figures and carry the same error. This is also why the total here can differ slightly from a reaction total printed elsewhere on the page: both are sums of the same rounded parts, taken over samples with different edges.

Coverage. Reactions were read on 4 of the 19 sampled posts in this sample. Summed by Telegram’s own count on each post — not by adding up the per-emoji breakdown above — those same posts carry 7 reactions in total: the kind of figure the paragraph above means by “a reaction total printed elsewhere on the page”.

Measured over the 19 most recent posts we hold, published 3 August 2026 to 5 August 2026, using the newest reading held for each. Telegram Stars are excluded: they are a payment, not a reaction, and they have their own section.

Recent posts

5 Aug 2026, 12:48 UTC87 views3 reactionsread 6 August 2026

#پاسخ 🌱 فقط با دیدن چند علامت نمی‌توان نوع نوروفیبروماتوز را مشخص کرد. تشخیص نوع NF نیاز به بررسی دقیق توسط پزشک دارد. 🔸 NF1 معمولاً با لکه‌های شیرقهوه‌ای روی پوست و نوروفیبروماها شناخته می‌شود و ممکن است علائم دیگری هم داشته باشد. 🔸 NF2 بیشتر با تومورهای عصب شنوایی شناخته می‌شود که می‌تواند باعث کاهش شنوایی، وزوز گوش یا مشکلات تعادل شود. 🔸 شوانوماتوز نوع دیگری از NF است که با تومورهای خاص سلول‌های عصبی (شوانو

2👍1

Signed Arezoo kordian

5 Aug 2026, 12:47 UTC85 viewsread 6 August 2026

#سوال_شما ❓ «من لکه پوستی، برجستگی، تومور مغزی و کاهش شنوایی دارم… نمی‌دانم کدام نوع نوروفیبروماتوز هستم؟»

Signed Arezoo kordian

4 Aug 2026, 17:27 UTC133 viewsread 6 August 2026

در بیماری نوروفیبروماتوز نوع ۱ ، تاکنون شواهد معتبری وجود ندارد که نشان دهد #کورکومین به‌طور معمول #خارش را بدتر می‌کند. با این حال، در هر فرد ممکن است پاسخ متفاوت باشد

4 Aug 2026, 17:27 UTC114 viewsread 6 August 2026

اگر فردی پس از شروع مصرف کورکومین دچار موارد زیر شود، باید احتمال حساسیت به آن را در نظر گرفت: خارش شدید یا افزایش خارش کهیر یا دانه‌های قرمز تورم لب‌ها، زبان یا صورت (نیاز به مراجعه فوری پزشکی) تنگی نفس (اورژانس)

4 Aug 2026, 17:26 UTC128 viewsread 6 August 2026

بله، #کورکومین (ماده فعال زردچوبه) در برخی افراد می‌تواند باعث خارش، بثورات پوستی یا واکنش آلرژیک شود، اما این عارضه نادر است.

4 Aug 2026, 17:26 UTC121 viewsread 6 August 2026

#کورکومین باعث #خارش می شه؟ #سوال_شما

4 Aug 2026, 11:35 UTC140 views2 reactionsread 6 August 2026

در مورد #کورکومین، در حال حاضر شواهد علمی کافی وجود ندارد که نشان دهد برای کاهش خارش در نوروفیبروماتوز مؤثر است؛ بنابراین توصیه نمی‌شود 🏖️🏖️🏖️🏖️

👍2

4 Aug 2026, 11:35 UTC140 views1 reactionsread 6 August 2026

- فکسوفنادین ۱۲۰ میلی‌گرم و کلرفنیرامین ۴ میلی‌گرم نیز داروهای ضدحساسیت هستند که می‌توانند خارش را کاهش دهند. در بیماران مبتلا به نوروفیبروماتوز نوع ۱ (NF1)، خارش همیشه ناشی از حساسیت نیست و گاهی به خود بیماری یا علل دیگری مانند خشکی پوست، اگزما یا مشکلات پوستی همراه مربوط می‌شود؛ بنابراین ممکن است نیاز به بررسی بیشتر یا تغییر درمان باشد. 🏖️🏖️🏖️🏖️🏖️🏖️🏖️🏖️

1

4 Aug 2026, 11:34 UTC128 viewsread 6 August 2026

داروهایی که مصرف می‌کنید، همگی از داروهای رایج برای کنترل خارش هستند: - کلوبتازول و فلوئوسینولون پمادهای کورتونی هستند و باید فقط طبق تجویز پزشک و برای مدت محدود استفاده شوند؛ مصرف طولانی‌مدت، به‌ویژه روی پوست سالم، می‌تواند باعث نازک شدن پوست و عوارض دیگر شود. 💿🌼💿

4 Aug 2026, 11:33 UTC124 viewsread 6 August 2026

پاماد کلوبتازول ۵ درصد پاماد فلوئوسینولون ۲۵ دصد قرص فَستوور فکسوفنادین ۱۲۰ قرص کلرفنیرامین ۴ میلی گرم این داروهایی مصرف میکنم

4 Aug 2026, 08:46 UTC129 views1 reactionsread 6 August 2026

پاسارگارد 5022-2910-0801-1635 💗

👍1

4 Aug 2026, 08:45 UTC125 viewsread 6 August 2026

اخيراً مشخص شده است که #خارش نوعی درد نوروپاتیک است. برای بسیاری از افراد یک داروی موضعی یا عمومی شامل #گاباینتین و #پرگابالین که داروهای خوراکی هستند و معمولاً برای کمک به درد عصبی مصرف می شوند به تسکین خارش کمک می کند🌷

Showing the 12 most recent of 19 posts we hold for @livingwithNF. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.

Forward network

Republishes

Channels on the register whose posts this channel has forwarded.

Built only from forwarded posts we have actually read, on both sides. Coverage is early and deliberately incomplete: a missing link means we have not read the post that would prove it, never that the relationship does not exist. Counts are distinct forwarded posts observed, so they only ever go up as we read more.

Mentions

Named by 1 registered channel — every channel on the register whose own posts have named this one, by its current username or any other username it currently holds, merged from two separately captured readings of the same fact so a namer caught by only one of them is not missed and a namer both caught is not counted twice. A username this channel has since dropped is not matched — that handle may belong to someone else now, and crediting today’s namer to yesterday’s owner would misattribute it.

Named by

Channels on the register whose posts name this channel's handle.

A mention is a weaker signal than a forward and is counted separately for that reason — naming a channel is not republishing it, and a handle in a post body is easy to place deliberately. The post counts beside each row below are distinct posts in which the handle appeared, from posts we have read on both sides — the “Named by N registered channels” figure above is a different count, of distinct NAMING CHANNELS rather than posts, and is not the sum of the rows under it.

Appears in Telegram’s recommendations for other channels

The reverse of the list above, and a different kind of signal. This does not require this channel to have ever been asked about directly — each row below is a channel we DID ask Telegram about, whose Telegram-generated list happened to include this one. A channel can appear here with an empty list above it, because being named by someone else’s query is independent of having been queried itself.

زبان و پزشکی(قربانی)
@medterms · 39,773
Telegram ranks this channel #45 of 82 here — alongside 81 others — read 30 August 2026

This channel appears in 1 seed channel's Telegram-generated recommendation list in total. Each is Telegram’s list for THAT channel, not this one — see how this is measured.

Cite this entry

A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 7 September 2026 — this entry's latest reading, not the date you are reading this.

“Living with NF زندگی با ان.اف” (@livingwithNF), 792 subscribers as measured 7 September 2026. Telegram Register, tgregister.com/channel/livingwithNF.

Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.